Harlija Dārta

Needed to fulfill this promise:

$2500

Harlija Dārta

Age:

18

Condition:

Proximal 16p11.2 deletions Syndrome

Need:

Therapies

$0 of $2500

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18-year-old Harley suffers from a rare genetic disease – Proximal 16p11.2 deletions Syndrome.

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This diagnosis is characterized by delayed physical development and balance disorders, but with the support of mom and Harley’s strong willpower, the girl managed to master the skill of riding a bicycle. Now her dream is to save money for a good bicycle so that she can go on closer and further trips with her mom.

 

This diagnosis has not yet been given a beautiful name, it includes various functional disorders : moderate mental retardation, atypical autism, scoliosis and various endocrine (hormonal) diseases.

Regular physiotherapeutic gymnastics is very important to maintain the existing level of physical condition and scoliosis does not worsen, the second essential direction of therapy for this diagnosis is art and music therapies that help reduce anxiety and eliminate the risks of self-harm.
One physiotherapy session costs 35 €, which is 140 € per month – the regularity of the lesson is required at least 1x a week, so it costs around 1400 € per year
One art or music therapy session costs 40€ – each therapy requires 10 cycles of classes, for a total of 800€ (400€ art therapy, 400€ music therapy).

Harley is currently learning the profession of a cook’s assistant and is becoming a great helper for her mom in the kitchen, now she knows how to make pasta with Bologna sauce and maybe in a couple of years will be a great worker in some professional kitchen.

This diagnosis is characterized by delayed physical development and balance disorders, but with the support of mom and Harley’s strong willpower, the girl managed to master the skill of riding a bicycle. Now her dream is to save money for a good bicycle so that she can go on closer and further trips with her mom.

 

This diagnosis has not yet been given a beautiful name, it includes various functional disorders : moderate mental retardation, atypical autism, scoliosis and various endocrine (hormonal) diseases.

Regular physiotherapeutic gymnastics is very important to maintain the existing level of physical condition and scoliosis does not worsen, the second essential direction of therapy for this diagnosis is art and music therapies that help reduce anxiety and eliminate the risks of self-harm.
One physiotherapy session costs 35 €, which is 140 € per month – the regularity of the lesson is required at least 1x a week, so it costs around 1400 € per year
One art or music therapy session costs 40€ – each therapy requires 10 cycles of classes, for a total of 800€ (400€ art therapy, 400€ music therapy).

Harley is currently learning the profession of a cook’s assistant and is becoming a great helper for her mom in the kitchen, now she knows how to make pasta with Bologna sauce and maybe in a couple of years will be a great worker in some professional kitchen.

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