Latvija ir br\u012bni\u0161\u0137\u012bga valsts ar pla\u0161iem me\u017eiem, ziedo\u0161\u0101m vasar\u0101m un sniegu kl\u0101t\u0101m ziem\u0101m, tom\u0113r \u012bpa\u0161o b\u0113rnu vec\u0101ki nesp\u0113j par to\u00a0 no sirds priec\u0101ties, jo ir daudzi aspekti, kas m\u016bsu valst\u012b nav sak\u0101rtoti, lai rad\u012btu dro\u0161u vidi b\u0113rnam ar invalidit\u0101ti un vi\u0146u vec\u0101kiem.<\/p>\n
Lai vec\u0101ki ikdien\u0101 sp\u0113tu r\u016bp\u0113ties par b\u0113rnu inval\u012bdu,\u00a0 bie\u017ei tas prasa 24\/7 – tas noz\u012bm\u0113, ka vismaz viens no vec\u0101kiem nevar str\u0101d\u0101t algotu darbu un visa finansi\u0101l\u0101 smaguma nasta gulstas uz str\u0101d\u0101jo\u0161\u0101\u00a0 vec\u0101ka pleciem. Diem\u017e\u0113l bie\u017ei gad\u0101s, ka vec\u0101ki nedz\u012bvo kop\u0101, un visbie\u017e\u0101k tie\u0161i mammas ir t\u0101s, kuras vienas pa\u0161as r\u016bp\u0113jas par savu b\u0113rnu ar invalidit\u0101ti. Vi\u0146u sp\u0113ki \u0101tri tiek izsmelti un b\u016btu nepiecie\u0161ami k\u0101di atelpas br\u012b\u017ei, kaut vismaz p\u0101ris stundas ned\u0113\u013c\u0101, lai vec\u0101ks var\u0113tu atp\u016bsties no savas smag\u0101s ikdienas, ta\u010du aukles pakalpojumus tad j\u0101sedz pa\u0161iem un \u0161\u0101du ekstru daudzi nevar at\u013cauties.<\/p>\n
Latvijas demokr\u0101tisk\u0101 sist\u0113ma ir sal\u012bdzino\u0161i jauna – gan t\u0101s tr\u016bkums, gan padomju okup\u0101cijas varas politika, kas no sabiedr\u012bbas m\u0113r\u0137tiec\u012bgi izst\u016bma personas ar invalidit\u0101ti, koncentr\u0113jot b\u0113rnus ar invalidit\u0101ti segreg\u0113t\u0101s apr\u016bpes iest\u0101d\u0113s, nevis \u013caujot tiem dz\u012bvot iek\u013caujo\u0161u dz\u012bvi \u0123imen\u0113 un sabiedr\u012bb\u0101, ir atst\u0101jusi p\u0113das \u0123imen\u0113m, kas audzina b\u0113rnus ar invalidit\u0101ti pieejamaj\u0101 atbalsta sist\u0113m\u0101 un sabiedr\u012bbas uztver\u0113, t\u0101p\u0113c, ja \u0123imen\u0113 ien\u0101k b\u0113rns ar invalidit\u0101ti, vec\u0101kiem ir j\u0101saskaras ar \u013coti daudziem izaicin\u0101jumiem.<\/p>\n
Pirmo lielo kr\u012bzi \u0123imenes piedz\u012bvo p\u0113c b\u0113rna 1,5 gadu vecuma, kad mammai ir j\u0101atgrie\u017eas darba tirg\u016b, bet \u0123imene nevar sa\u0146emt asistentu, kas pal\u012bdz\u0113tu b\u0113rnu apr\u016bp\u0113t . Ar\u012b pirmskolas izgl\u012bt\u012bbas iest\u0101des liel\u0101kaj\u0101 da\u013c\u0101 situ\u0101ciju tik agr\u012bn\u0101 vecum\u0101 nav gatavas uz\u0146emt b\u0113rnu, sevi\u0161\u0137i , ja b\u0113rns ir ar invalidit\u0101ti, k\u0101 ar\u012b netiek nenodro\u0161in\u0101ta asist\u0113\u0161ana, t\u0101p\u0113c vairum\u0101 gad\u012bjumu mammas neatgrie\u017eas darba tirg\u016b, zaud\u0113 savas profesion\u0101l\u0101s iema\u0146as, strauji sar\u016bk \u0123imenes ien\u0101kumi. Ja b\u0113rnam ir \u012bpa\u0161i smaga invalidit\u0101te un nepiecie\u0161ama \u012bpa\u0161a kop\u0161ana, \u0123imene sa\u0146em 313 EUR lielu pabalstu \u2013 \u0161is pabalsts ir veidots k\u0101 kompens\u0101cija b\u0113rna kop\u0113jam, tom\u0113r tas nav pat valst\u012b noteikt\u0101s minim\u0101l\u0101s algas apm\u0113r\u0101 (minim\u0101l\u0101 alga ir 500EUR). Neatkar\u012bgi no b\u0113rna invalidit\u0101tes veida, \u0123imene sa\u0146em piemaksu 106 EUR par b\u0113rna invalidit\u0101ti. Ar\u012b \u0161\u012bs abas summas kop\u0101 v\u0113l arvien nesp\u0113j izveidot pat minim\u0101lo algu, turkl\u0101t, b\u0113rna ar invalidit\u0101ti vajadz\u012bbas ir daudz specifisk\u0101kas un d\u0101rg\u0101kas.<\/p>\n
Medikamentu kompens\u0101cijas sist\u0113ma ir balst\u012bta uz diagno\u017eu kodu principa – ja b\u0113rnam ir k\u0101da diagnoze, kas nav klasific\u0113ta \u0161aj\u0101 sist\u0113m\u0101 vai diagnozes v\u0113l arvien nav , \u0123imene nevar pretend\u0113t uz medikamentu kompens\u0113\u0161anu.<\/p>\n
Valsts nodro\u0161ina da\u017e\u0101du veidu tehnisk\u0101s pal\u012bgier\u012bces, tom\u0113r uz to sa\u0146em\u0161anu j\u0101gaida rinda (rati\u0146kr\u0113slam pat 1-1,5 gadi), turkl\u0101t \u0123imene nevar izv\u0113l\u0113ties sev nepiecie\u0161amo modeli, vairum\u0101 situ\u0101ciju ir j\u0101\u0146em standartiz\u0113ti, valsts iepirkum\u0101 ieg\u0101d\u0101ti pal\u012bgl\u012bdzek\u013ci vai j\u0101velta milzu p\u016bles, lai p\u0101rliecin\u0101tu sist\u0113mu, ka ir nepiecie\u0161ams kaut kas cits. Piem\u0113ram, orto\u017eu izgatavo\u0161an\u0101 \u0123imen\u0113m katru gadu j\u0101piemaks\u0101 vai j\u0101l\u016bdz ziedot\u0101ju pal\u012bdz\u012bba ( aptuveni 2000-5000 EUR par vienu ortozi).\u00a0 Ja b\u0113rnam t\u0101das vajag vair\u0101kas, ar\u012b summa ir daudz liel\u0101ka. Valsts visp\u0101r nekompens\u0113, piem\u0113ram, specializ\u0113tos autokr\u0113sli\u0146us, kas maks\u0101 aptuveni 2000 EUR.<\/p>\n
B\u016btiskas probl\u0113mas \u0123imenes norm\u0101lai funkcion\u0113\u0161anai sag\u0101d\u0101 asistentu tr\u016bkums. Likums at\u013cauj asistenta pakalpojumu sa\u0146emt no b\u0113rna 5 gadu vecuma, ta\u010du ne valsts ne pa\u0161vald\u012bba nenodro\u0161ina pakalpojumu sniedz\u0113jus. Asistentu atalgo\u0161anas sist\u0113ma paredz, ka cilv\u0113ks sa\u0146em minim\u0101lo algu (500 EUR par 160h darbu m\u0113nes\u012b)bez soci\u0101laj\u0101m garantij\u0101m, atva\u013cin\u0101juma, apm\u0101c\u012bb\u0101m utt. T\u0101p\u0113c asistentu praktiski nav, to lomu pilda \u0123imenes locek\u013ci. Ja \u0123imenei izdodas atrast asistentu, tad vi\u0146iem m\u0113nes\u012b ir j\u0101piemaks\u0101 asistentam apm\u0113ram tikpat liela naudas summa.<\/p>\n
Ir b\u016btiskas probl\u0113mas ar iek\u013caujo\u0161o izgl\u012bt\u012bbu \u2013 skolu vide nav piem\u0113rota b\u0113rniem ar invalidit\u0101ti (taj\u0101 nevar p\u0101rvietoties ar ratiem utt.), turkl\u0101t pedagogiem nav prasmju str\u0101d\u0101t ar \u0161\u0101diem b\u0113rniem, t\u0101p\u0113c vairum\u0101 situ\u0101ciju \u0123imenes, kas audzina b\u0113rnus ar invalidit\u0101ti, izv\u0113las vai nu m\u0101jm\u0101c\u012bbu, vai b\u0113rnu s\u016bt\u012bt specializ\u0113t\u0101 skol\u0101 segreg\u0113t\u0101 vid\u0113, kas bie\u017ei atrodas t\u0101lu no m\u0101j\u0101m, nereti b\u0113rni skol\u0101 dz\u012bvo visu ned\u0113\u013cu. Ja \u0123imenes bud\u017eets to at\u013cauj un izdodas atrast pretimn\u0101ko\u0161u skolu, da\u017ei izv\u0113las priv\u0101tskolas, ta\u010du tas ir \u013coti, \u013coti reti.<\/p>\n
Valst\u012b nav att\u012bst\u012bta atbalsta sist\u0113ma un gan atbalsta ieg\u016b\u0161ana, gan dz\u012bves organiz\u0113\u0161ana ir balst\u012bta uz vec\u0101ku pleciem, ta\u010du bie\u017ei vien vec\u0101kiem nav zin\u0101\u0161anu, naudas un prasmju, turkl\u0101t ir liela psiholo\u0123iska slodze. Vec\u0101ki vienu reizi dz\u012bv\u0113 var sa\u0146emt 10 x psihologa konsult\u0101ciju, psihoterapeita pal\u012bdz\u012bbu nevar sa\u0146emt visp\u0101r \u2013 t\u0101 ir j\u0101apmaks\u0101 pa\u0161iem un daudzi to nevar at\u013cauties.<\/p>\n
Apkopojot b\u0113rnam ar invalidit\u0101ti nepiecie\u0161amos t\u0113ri\u0146us gada griezum\u0101 (kas radu\u0161ies tie\u0161i vi\u0146a speci\u0101lo vajadz\u012bbu d\u0113\u013c, nevis tipiskie -ap\u0123\u0113rbs, uzturs utt.), \u0123imenes nor\u0101da, ka gad\u0101 b\u0113rna vajadz\u012bbu pilnv\u0113rt\u012bgai apmierin\u0101\u0161anai b\u016btu nepiecie\u0161ami aptuveni 21600 EUR (1800 EUR m\u0113nes\u012b.) Da\u017e\u0101du valsts atbalsta sist\u0113mu ietvaros var ieg\u016bt aptuveni 1\/3 da\u013cu vai nedaudz vair\u0101k no \u0161\u012bs summas, ta\u010du p\u0101r\u0113jo \u0123imenes nodro\u0161ina pa\u0161u sp\u0113kiem, l\u016bdz ziedot\u0101ju atbalstu vai ar\u012b b\u0113rns, diem\u017e\u0113l, nesa\u0146em kvalitat\u012bvai un integr\u0113tai dz\u012bvei nepiecie\u0161amo pal\u012bdz\u012bbu.<\/p>\n
Latvijas valsts cen\u0161as \u0161iem vec\u0101kiem pal\u012bdz\u0113t gan ar pabalstiem, gan terapij\u0101m b\u0113rniem un psiholo\u0123isku atbalstu vec\u0101kiem, ta\u010du, protams, ar to ir daudz par maz, lai \u0123imene, kura audzina \u012bpa\u0161o b\u0113rnu, var\u0113tu norm\u0101li funkcion\u0113t.<\/p>\n
Bie\u017ei tr\u016bkst speci\u0101listi, kuri b\u0113rnam nepiecie\u0161ami un tie maks\u0101 lielu naudu, lai tiktu pie valsts apmaks\u0101ta speci\u0101lista ir j\u0101gaida gar\u0101 rind\u0101, da\u017ereiz rinda ilgst pat gadu vai vair\u0101k, ta\u010du pal\u012bdz\u012bba nepiecie\u0161ama uzreiz. T\u0101pat ir ar\u012b nodarb\u012bbas, kas b\u0113rnam fundament\u0101li nepiecie\u0161amas, bet valsts apmaks\u0101taj\u0101 programm\u0101 t\u0101s nemaz nav iek\u013cautas, k\u0101 piem\u0113ram, b\u0113rniem ar autisk\u0101 spektra trauc\u0113jumiem vispiem\u0113rot\u0101k\u0101s ir ABA terapijas, ta\u010du t\u0101s vec\u0101kiem j\u0101sedz no savas kabatas. Tr\u016bkst ar\u012b speci\u0101las p\u0101rtikas bez kuras b\u0113rni ar da\u017e\u0101diem \u0113\u0161anas trauc\u0113jumiem nevar izdz\u012bvot un vec\u0101ki ir spiesti no saviem niec\u012bgajiem l\u012bdzek\u013ciem tos pirkt par d\u0101rgu naudu.<\/p>\n
Ja dodas \u0101rpus Latvijas galvaspils\u0113tas R\u012bgas, tad situ\u0101cija ir v\u0113l smag\u0101ka, tur \u0123imenes liel\u0101ko tiesu spiestas dz\u012bvot tikai no valsts pie\u0161\u0137irtajiem pabalstiem, kas ir tik niec\u012bgi, ka b\u0113rni dz\u012bvo tiem nepiem\u0113rotos apst\u0101k\u013cos, tai skait\u0101 bez silt\u0101 \u016bdens, nereti pat bez elektr\u012bbas, bez transporta ar kuru b\u0113rnu p\u0101rvad\u0101t nepiecie\u0161am\u012bbas gad\u012bjum\u0101 un lauku apvidos neatliekamo medic\u012bnisko pal\u012bdz\u012bbu var n\u0101kties gaid\u012bt vair\u0101kas stundas vai pat diennakti.<\/p>\n
Protams, ar\u012b pie mums ir da\u017e\u0101das labdar\u012bbas organiz\u0101cijas, kas visiem sp\u0113kiem cen\u0161as \u0161\u012bm \u0123imen\u0113m pal\u012bdz\u0113t gan finansi\u0101li, gan mor\u0101li, tai skait\u0101 ar\u012b organiz\u0101cija \u201cPal\u012bdz\u0113sim. lv\u201d, ta\u010du t\u0101 k\u0101 m\u0113s esam nevalstiska organiz\u0101cija, tad finans\u0113jumu no valsts nesa\u0146emam un n\u0101kas izdz\u012bvot no ziedot\u0101ju atbalsta, l\u012bdz ar to esam \u013coti ierobe\u017eoti savas pal\u012bdz\u012bbas snieg\u0161an\u0101.<\/p>\n
Pal\u012bdz\u0113sim.lv gada laik\u0101 vid\u0113ji tiek realiz\u0113ti 150 soci\u0101l\u0101s integr\u0101cijas pas\u0101kumi, kuros kopum\u0101 piedal\u0101s ap 500 b\u0113rnu, jaunie\u0161u un \u0123ime\u0146u. Ar liel\u0101ko da\u013cu dal\u012bbnieku sadarb\u012bba notiek ilgsto\u0161i, gada laik\u0101 aktivit\u0101t\u0113s iesaistoties ap 100 jauniem dal\u012bbniekiem.<\/p>\n
Vasar\u0101s r\u012bkojam \u0123ime\u0146u vasaras nometnes, sniedzot atbalstu vismaz 20 \u0123imen\u0113m, kur\u0101s aug b\u0113rni ar invalidit\u0101ti. Organiz\u0101cijas past\u0101v\u0113\u0161anas laik\u0101 pas\u0101kumos un aktivit\u0101t\u0113s vienm\u0113r tiek iesaist\u012bta visa \u0123imene, t\u0101d\u0113j\u0101di veicinot \u0123imenisko v\u0113rt\u012bbu stiprin\u0101\u0161anu \u2013 kvalitat\u012bva kop\u0101 pavad\u012bt\u0101 laika veicin\u0101\u0161ana, vienam otra iepaz\u012b\u0161ana caur da\u017e\u0101d\u0101m aktivit\u0101t\u0113m.<\/p>\n
\u0122imen\u0113s, kur\u0101s aug b\u0113rns ar invalidit\u0101ti Latvij\u0101 ir \u013coti saspringta un nedro\u0161a situ\u0101cija, jo tr\u016bkst finansi\u0101la atbalsta un skaidr\u012bbas par b\u0113rna n\u0101kotni un to vai vesel\u012bbas st\u0101voklim pasliktinoties b\u016bs iesp\u0113ja sa\u0146emt nepiecie\u0161amo medic\u012bnisko atbalstu.<\/p>\n
J\u016bsu finansi\u0101lais atbalst Latvijas \u0123imen\u0113m dotu iesp\u0113jas uz kvalitat\u012bvu pakalpojumu, p\u0101rtiku vai iesp\u0113ju uz atelpas br\u012bdi, lai skats uz n\u0101kotni liktos jau daudz cer\u012bg\u0101ks.<\/p>\n","protected":false},"excerpt":{"rendered":"
Situ\u0101cija Latvijas \u0123imen\u0113, kur\u0101 aug b\u0113rns ar invalidit\u0101ti. Latvija ir br\u012bni\u0161\u0137\u012bga valsts ar pla\u0161iem me\u017eiem, ziedo\u0161\u0101m vasar\u0101m un sniegu kl\u0101t\u0101m ziem\u0101m, tom\u0113r \u012bpa\u0161o b\u0113rnu vec\u0101ki nesp\u0113j par to\u00a0 no sirds priec\u0101ties, jo ir daudzi aspekti, kas m\u016bsu valst\u012b nav sak\u0101rtoti, lai rad\u012btu dro\u0161u vidi b\u0113rnam ar invalidit\u0101ti un vi\u0146u vec\u0101kiem. Lai vec\u0101ki ikdien\u0101 sp\u0113tu r\u016bp\u0113ties […]<\/p>\n","protected":false},"author":9,"featured_media":0,"parent":508,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-583","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\n